Imagine not being able to move because everything around you is spinning so badly you can't tell if you are standing or lying down. Try to get through a day, a week, or a month with a continual, high-pitched ringing in your ear, or worse yet, losing your hearing altogether. Picture yourself walking down the street or driving a car, then suddenly collapsing. Envision losing your job or getting divorced because you are unable to participate in the day-to-day activities of your life.
Would you be able to go through this without a support system because your friends, colleagues, and loved ones don't understand what it is like to live with the chronic, incurable and debilitating illness known as Meniere’s (men-years) Disease? Meniere's is a vestibular disorder that significantly impairs daily living through debilitating bouts of vertigo, hearing loss, tinnitus, hyperacusis, and ear pain — leaving sufferers feeling alone and abandoned.Unheard: The Ears of Meniere’s documentary examines this devastating condition, finally giving a voice to millions.
Often, as is the case with many 'invisible' illnesses, people can't understand why someone who looks healthy can be so incapacitated. Because of the lack of awareness and understanding of Meniere’s, patients are thrust into the role of educator — they must teach themselves, their family, and sometimes even their health care professionals about the disorder and how it impacts them. Unheard: The Ears of Meniere’s is here to help.
The film will feature in-depth, dynamic stories told directly from Meniere’s sufferers and noted Neurotologists Dr. Sujana Chandrasekhar and Dr. Anil Lalwani will provide the most up-to-date medical information.
Unheard: The Ears of Meniere’s will go beyond just informing the public of this incapacitating disease; it will also use distinctive audio and visual effects to simulate the various symptoms being discussed. The spontaneous spins of vertigo, roaring sounds of tinnitus, excessively loud distortion of hyperacusis, and dramatic hearing loss will be directly experienced by the audience, thus creating more understanding of the disease and empathy for those diagnosed. This all-encompassing overview of Meniere’s will be an extremely enlightening representation of a devastating medical condition that few are aware of.
The producer of Unheard:The Ears of Meniere’s, a veteran film and television executive, was diagnosed with Meniere’s nine years ago and is committed to developing a thoughtful documentary that will inform, entertain and inspire others.
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The room spins violently. The earth disappears from under your feet. A horrific buzzing fills your ears as painful pressure builds in your head. It comes out of nowhere, like a thief in the night stealing your health. Life changes forever. But how? Why?
A startling secret, hiding in plain sight, Meniere's Disease silently robs thousands of their hearing and balance along with the ability to maintain their social and professional lives, forcing them into a world of unjust compromise. You can't see it, and they can't explain it.
Unheard: The Ears of Meniere's documentary film brings this mysterious syndrome into the public eye, exploring the enigmatic condition that has plagued many -- including painter Vincent van Gogh, astronaut Alan Shepard and most recently, musician Huey Lewis, actress Kristin Chenoweth, and author Guy Kawasaki-- yet hasn't fully reached the public consciousness. The film pieces together a complicated puzzle of what is keeping people in the dark in matters of their own health. With creative and precise camera work, it pulls the audience inside the victims' heads, simulating their symptoms, so viewers directly experience how it physically debilitates them.
Follow the complex investigation into a disabling disease that has remained unheard of for far too long.
Janine McGoldrick - Producer/Director
Janine is a veteran entertainment executive who developed tactical promotional campaigns for film, television, and home entertainment. Most notably, as SVP at the independent film company Cohen Media Group (CMG), she led the awards campaign for the Academy Award® winning film The Salesman. At CMG, she worked closely with the CEO, Marketing, Distribution, and Acquisition teams to provide counsel on release schedules, festival campaigns, and films targeted for procurement.
Previously, Janine worked at HBO supervising publicity for the Consumer Marketing, Global Licensing, and Home Entertainment divisions. A gifted project manager, McGoldrick has worked with numerous studios, including Universal Pictures, Artisan Entertainment, Lionsgate, BBC, Hart-Sharp, New Line, and the NY International Children’s Film Festival, to help launch some of the most exciting releases in entertainment. She is a member of The National Academy of Television Arts & Sciences (Emmys) and NY Women in Film & Television.
Janine was diagnosed with Meniere’s nine years ago.
Matt Seigel – Cinematographer
Clio Award® winning director of photography Matt Siegel designs & composes, and lights for commercials, feature films, and documentaries. As a feature film camera operator, he has worked on The Matrix: Reloaded, Master and Commander, and Mr. and Mrs. Smith. Matt has extensive industry experience as a 2nd Unit DP and Camera Operator on episodic television, including the WB series Everwood, the CBS drama Joan of Arcadia, the Jerry Bruckheimer series Just Legal, and the CBS series The Mentalist.
His commercial clients include Google, Toyota, Ford, SONY, Audi, MasterCard, Microsoft, and Coca-Cola, with multi-platform branding campaigns filmed for Bayer, Honda, CVS, Timberland, and The Smithsonian Institute, and the US Army. His work has won international recognition, including ADDY, TELE, Cannes’ Golden Lion, and Cable ACE awards.
Giovanna Aguilar – Consulting Producer
Giovanna Aguilar is a Bilingual (Spanish) award-winning multimedia creator and filmmaker who works on documentaries and narratives celebrating the human spirit's tenacity to triumph over adversity. She is developing EPIC Women In Sports, a docuseries she will direct in 2023.
Her producing credits include When We Were Shuttle, a PBS documentary exploring what the Shuttle Program meant to the exceptional men and women who worked behind the scenes to help make it fly, and When We Were Apollo (W3A), the Emmy® Award-winning Best Historical documentary exploring the enduring impact of the Apollo Space Program. She is a member of New York Women in Film & TV, served as the Public Relations Chair (2010-2011) of the New York Chapter of the National Association of Latino Independent Producers (NALIP), and is the current Vice President of the Cliffside Park Arts Association, NJ.
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